Paul Berger is a staff writer at The Forward. His articles have appeared in The New York Times, The Washington Post, The (London) Times, The Daily and Guardian.co.uk.

Aug
24

Skin Flick

By

Between mind-numbing shows about interior design and car makeovers on The Learning Channel, I happened to catch an inspiring documentary, The Boy Whose Skin Fell Off, the touching story of Jonny Kennedy, a English fellow who was born with a rare genetic disorder called dystrophic epidermolysis bullosa, which caused his skin to fall off for the duration of his life. Despite a lifetime of suffering, Jonny maintained a positive attitude and sense of humor through it all. I recommend watching it if you can. The show even has subtitles for those who cannot understand Jonny’s English accent. And you get to witness a really awkward funeral service with Jonny’s favorite Queen song blaring in the background.

Jonny is not to be confused with Rubber Johnny, even though they sort of look and sound the same.

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